Assist in recruiting patients for SCD curative therapy clinical trials by supporting the prospective collection of data to enable the establishment of contemporaneous controls and potential patient cohorts.
Advance science to develop safe and effective SCD curative therapies by cataloguing, harmonizing and standardizing data collection.
Organize and share data across the sickle cell community - by leveraging NHLBI data resources and polices.
NHLBI SCD Data Resources
CureSCi MetaData Catalog provides study documentation and a list of curated data elements
BioData Catalyst provides access and cloud computing space to phenotypic and genotypic data
BioLINCC provides access to phenotypic data and biospecimens collected on NHLBI funded clinical studies